Restless Legs Syndrome (RLS), also known as Willis-Ekbom Disease, is a neurological disorder characterized by an uncontrollable urge to move the legs, often accompanied by uncomfortable sensations. These symptoms typically worsen during periods of rest or inactivity, especially in the evening or at night, and can severely disrupt sleep and quality of life.

People with RLS often describe the sensations as:

• Crawling, creeping, or tingling feelings deep within the legs.
• Throbbing or aching that makes it hard to stay still.
• Relief through movement – walking, stretching, or jiggling the legs temporarily eases discomfort.
• Worsening at night – symptoms intensify in the evening and during sleep.
• Sleep disturbances – frequent leg twitching or kicking during sleep, often linked to Periodic Limb Movement Disorder (PLMD).

Though the legs are most commonly affected, some individuals experience similar sensations in the arms or other limbs.

The exact cause of RLS is not fully understood, but several factors are known to contribute:

• Dopamine imbalance – affects muscle control and movement.
• Iron deficiency – even with normal blood levels, low brain iron may trigger symptoms.
• Genetics – RLS often runs in families, especially when symptoms begin before age 40.
• Pregnancy – hormonal changes during the third trimester can worsen symptoms.
• Chronic conditions – such as rheumatoid arthritis, kidney disease, or diabetes.
• Medications – certain antidepressants, antipsychotics, and antihistamines may exacerbate RLS.

Managing RLS involves a combination of lifestyle changes and medical therapies:

• Iron supplementation – often recommended even when ferritin levels are normal.
• Dopamine agonists – such as ropinirole or pramipexole, help reduce symptoms.
• Gabapentin or pregabalin – used for nerve pain and sleep disturbances.
• Lifestyle adjustments:
• Regular exercise and stretching
• Avoiding caffeine, alcohol, and nicotine
• Establishing a consistent sleep routine
• Reducing sugar intake (a known trigger for some)

Real-life experiences help illuminate the daily challenges and victories of living with RLS:

• Joylou, a 71-year-old with secondary RLS due to rheumatoid arthritis, found relief through a personalized nighttime routine: magnesium supplements, CBD gummies, and cutting out sugar. She also uses ropinirole and over-the-counter remedies like Hylands Restful Legs during the day.
• The Sleep Disorders Tips site shares stories from individuals who describe sleepless nights, emotional stress, and the importance of community support.
• On the Restless Legs Syndrome Foundation, people like Starla and Peter share how art, advocacy, and medication have helped them cope with severe RLS and raise awareness.

Restless Legs Syndrome is more than just a nighttime nuisance—it’s a complex condition that affects sleep, mood, and daily life. With proper diagnosis, tailored treatment, and emotional support, individuals with RLS can find relief and regain control. Sharing stories and raising awareness helps break the silence around this often misunderstood disorder.